Links & Resources

  General links

  • Centers for Disease Control and Prevention (CDC)
  • IBIS: International Birth Defects Information systems 
  • March of Dimes
  •  

    Organisations for Registers of Birth Defects

    Teratology

     

    International Clearing House of Birth Defects Surveillance and Research (ICBDSR)

    Members: Addresses and Staff

    Australia: ACAMS
    Australia: VBDR
    Australia: WABDR
    Canada:CCASN
    Canada-Alberta: ACASS
    Canada: British Columbia
    Chile-Maule: RRMC-SSM
    China: BDSS-Beijing
    China: CBDMN
    Costa Rica: CREC
    Cuba:RECUMAC
    Czech Republic
    England & Wales
    Finland
    France: Paris
    France: REMERA
    France: Strasbourg
    Germany: Sax-Anh
    Hungary
    Iran: TROCA
    Ireland: Dublin
    Israel: IBDSP
    Italy Cam: BDRCam
    Italy Em-Rom: IMER
    Italy Lombardy: RMCL
    Italy North East
    Italy Tuscany: RTDC
    Italy Sicily: ISMAC
    Japan: JAOG
    Malta: MCAR
    Mexico: RYVEMCE
    New Zealand
    Northern Netherlands
    Norway: MBRN
    Russia Moscow: MRRCM
    Slovak Republic
    South Africa: SABDSS
    South America: ECLAMC
    Spain: ECEMC
    Sweden
    Ukraine: OMNI-Net
    UK Wessex: WANDA
    USA-Atlanta: MACDP
    USA-California: CBDMP
    USA-Texas: BDES
    USA-Utah: UBDN
    Wales: CARIS

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

    ICBDSR CENTRE
    International Centre on Birth Defects
    Via Carlo Mirabello, 14
    00195 Rome ITALY
    Phone: 39-06-3701905
    Fax:     39-06-3701904
    E-mail: centre@icbdsr.org 


     

     Australia National: ACAMS    
    Elisabeth Sullivan, MD, Programme Director
    AIHW National Perinatal Statistics Unit
    Sydney Children's Hospital
    2nd Floor, McNevin Dickson Building
    Randwick Hospital Campus
    Randwick NSW 2031
    Australia
    Phone: 61-3-96162729
    Fax:     61-2-93821025
    E-mail: npsu@unsw.edu.au
    Web:   www.aihw.gov.au/npsu
    ^TOP

     Australia Victoria: VBDR
    Jane Halliday, PhD
    Consultant Epidemiologist to VBDR
    Public Health Genetics
    Murdoch Childrens Research Institute
    Parkville 3052
    Phone 03 8341 6260
    E-mail: janehalliday.h@mcri.edu.au 

    Merilyn Riley
    Senior Research Officer
    Victorian Birth Defects Register   
    Victorian Perinatal Data Collection Unit   
    GPO Box 4003                                                  
    Melbourne 3001       
    Phone: 03 9096 2702
    E-mail: merilyn.riley@dhs.vic.gov.au
    ^TOP

     Australia Western: WABDR
    Clinical Professor Carol Bower, Programme Director
    Western Australia Birth Defects Registry (WABDR) 
    King Edward Memorial Hospital 
    PO Box 134 Subiaco 6904,  Western Australia
    Phone: 618 9340 2721
    Fax:     618 9340 2636
    E-mail: caroline.bower@health.wa.gov.au 
    Site:     http://www.kemh.health.wa.gov.au/services/birth_defects/index.htm
    ^TOP

     Canada: CCASN
    Juan Andres Leon
    Maternal and Infant Health Section
    Public Health Agency of Canada
    10th Floor, Jeanne Mance Bldg, A.L. 1910C,
    Tunney's Pasture
    Ottawa, Ontario Canada K1A OK9
    Phone: 1-613.941.39205
    Fax:     1-613-941-9927
    E-mail: juan_andres_leon@phac-aspc.gc.ca

    Jocelyn Rouleau, Senior Research Assistant
    Phone: 1-613-954-4316
    E-mail: jocelyn_rouleau@phac-aspc.gc.ca
    ^TOP

     Canada Alberta: ACASS
    R. Brian Lowry, MD,  Programme Director  
    ACASS / Clinical Genetics
    Alberta Children's Hospital
    2888, Shaganappi Trail NW,
    Calgary, AB, Canada. T3B 6A8
    Phone: 403-955-7370
    Fax:     403-955-2870
    E-mail: brian.lowry@calgaryhealthregion.ca

    Barbara Sibbald - Manager
    E-mail: barbara.sibbald@calgaryhealtregion.ca
    ^TOP

     Canada British Columbia
    Vance Hanson
    Director
    Program Evaluation, Corporate andManagement Operations
    Phone: 250- 9522438
    E-mail: vance.hanson@gov.bc.ca

    Don Rintoul
    Director,  Informatics
    Knowledge Integration and Development
    Phone: 250 9521244
    Fax:  250-9521534
    E-mail: Don.Rintoul@gov.bc.ca

    Health Sector IM/IT Division
    Ministry of Health Services
    2-1, 1515 Blanshard St
    Victoria BC  V8W 3C8, Canada

     Chile-Maule: RRMC-SSM 
    M.Aurora Canessa,
    LinaresHospital,
    Maule Region- Chile.
    AV. BRAZIL 753, LINARES, Chile.
    Phone: 56-73-563276, 56-73-219879.
    Fax:     56-73-219111, 56-73-219879.
    E-mail: rrmc@ssmaule.cl
    ^TOP

     China: BDSS-Beijing
    Zhu Li, MD,  Programme Director
    National Centre for Maternal and Infant Health
    Peking University Health Science Center
    Rm 101 Research Centre, 38 College Rd.
    Beijing 100191 PR China
    Phone: 86-10-82801138
    Fax:     86-10-82801141
    E-mail: lizhu3699@gmail.com
    ^TOP

     China: CBDMN
    Zhu Jun, MD,  Programme Director
    National Centre Birth Defects Monitoring (CNBDM)
    West China University of Medical Sciences
    No. 17 Section 3-Ren Min Nam Lu
    Chengdu - PRC - 610041, China
    Phone: 86-28-5501363
    Fax:     86-28-5501363
    E-mail: cnbdms@mail.sc.cninfo.net
    ^TOP

     Costa Rica: CREC
    Lila Umaña,
    Costa Rican Birth Defects Register Centre (CREC)
    Department of Genetics,
    Costa Rican Institute of Research and training in Nutrition and Health.
    PO Box 4-2250 Tres Ríos, Cartago.
    Costa Rica, Central America.
    Phone: (506) 2799911
    Fax:     (506) 2795546
    E-mail: lumana@inciensa.sa.cr
    ^TOP

     Cuba: RECUMAC
    Maria Teresa Pérez Mateo, Recumac
    Centro Nacional de Genética Medica ISCM-Habana
    Victoria de Giròn, C.P. 16000 
    Ciudad de la Habana. Cuba.
    E-mail: mauro@infomed.sld.cu
    ^TOP

     Czech Republic
    Antonin Sipek, MD, PhD, Program Director
    National Register of Congenital Anomalies in the Czech Republic
    Institute of Health Information and Statistics of the Czech Republic
    Corresponding address:
    Antonin Sipek, MD, PhD 
    Department of Medical Genetics
    Thomayer University Hospital, Prague
    Videnska 800
    140 59, Praha 4, CZECH REPUBLIC
    Phone:+420 261083636
    Fax:    +420 261083636
    E-mail: registrvvv@seznam.cz
    Web:   www.vrozene-vady.cz
    ^TOP

     England & Wales
    Vera Ruddock,  Programme Director
    Office for National Statistics
    Room 2.164 Government Buildings
    Cardiff Road, Newport
    Gwent   NP10 8XG
    Wales
    Phone: 44-01633 812918
    Fax:     44-01633 812335
    E-mail: vera.ruddock@ons.gov.uk
    ^TOP

     Finland
    Annukka Ritvanen
    The Finnish Register of Congenital Malformations
    THL
    National Institute for Health and Welfare
    P.O.BOX 30, 00271 HELSINKI, FINLAND
    Lintulahdenkuja 4, 00530 HELSINKI, FINLAND
    Telephone +358 20 610 7376
    Mobile: +358 50 501 2667
    Telefax +358 20 610 7459
    E-mail: annukka.ritvanen(at)thl.fi
    ^TOP

     France: Paris
    Babak Khoshnood, MD, PhD, Programme Director
    Paris Registry of Congenital Malformations
    INSERM U953
    Hôpital Saint Vincent de Paul, Bât Lelong – porte no. 5 – 1er étage
    82 av. Denfert Rochereau 75014 Paris, France
    Phone: 33-1-42345575
    E-mail: babak.khoshnood@inserm.fr

    Nathalie Lelong
    E-mail: Nathalie.lelong@inserm.fr 
    ^TOP

     France: REMERA
    Emmanuelle Amar, Programme Director
    Registre Des Malformations en Rhone Alpes
    Faculté Laennec
    7-9 rue Guillaume Paradin
    69372 LYON - FRANCE
    Phone: 33-4-78771058
    Fax: 33-4-78771088
    E-mail: emmanuelle.amar@orange.fr
    ^TOP

     France: Strasbourg 
    Bérenice Doray, Programme Director
    Laboratoire de Génétique Médicale
    Faculté de Médecine
    11 rue Humann
    67985 Strasbourg Cedex, France
    Phone: 33-3-88138120
    E-mail: Berenice.Doray@chru-strasbourg.fr 
    ^TOP

     Germany Saxony-Anhalt
    Simone Poetzsch, Program Director, until March 31, 2010

    Anke Rißmann, Program Director, from April 1, 2010
    Nephrology/ Neonatology
    Head of Malformation Monitoring Center Saxony-Anhalt
    Otto-von-Guericke University
    Leipziger Strasse 44
    D-39120 Magdeburg, Germany
    E-mail: Anke.Rissmann@med.ovgu.de
    Web:   www.angeborene-fehlbildungen.com
    ^TOP

     Hungary
    Andrea Valek, MD, Programme Director
    Department of  Hungarian Congenital Abnormality Registry and Surveillance
    National Centre for Healthcare Audit and Inspection
    Gyali út 2-6.
    H-1966 Budapest, Pf. 64
    Hungary
    Phone:  36-1-476 1129
    Fax:      36-1-476 1389
    E-mail:  e-vrony@oszmk.antsz.hu 
                valek.andrea@ogyei.hu

    Programme Management Team:
    Judit Beres, PhD, E-mail: beres.judit@oszmk.antsz.hu
    Julia Metneki, PhD, E-mail: metneki.julia@oszmk.antsz.hu 
    Janos Sandor, MD, PhD, E-mail: janos.sandor@med.unideb.hu
    Margit Vadasz, E-mail: vadasz.margit@oszmk.antsz.hu

    Inactive Staff (Maternity leave): 
    Erzsebet Horvath-Puho
    Melinda Csaky-Szunyogh, MSc
    ^TOP

     Iran: TROCA
    Saeed Dastgiri, PhD, Programme Director
    Department of Community and Family Medicine
    School of Medicine
    Tabriz University of Medical Sciences
    Tabriz, Iran
    Phone: 98 914 415 7039
    Fax:     98 411 336 4668
    E-mail: saeed.dastgiri@gmail.com
    Web:   http://www.tbzmed.ac.ir/troca


      Ireland: Dublin
    Bob McDonnell, MD, Programme Director
    Population Health Directorate
    Health Service Executive
    Dr. Steeven’s Hospital
    Dublin 8 - Ireland
    Phone: 353-1-6352752
    Fax:  353-1-6353745
    E-mail: bob.mcdonnell@hse.ie

     

    Virginia Delany, Registry Co-ordinator/Research nurse
    Phone: 353-1-6352751
    Fax: 353-1-6353745
    E-mail: virginia.delaney@hse.ie
    ^TOP

     Israel: IBDSP 
    Prof. Paul Merlob,  Programme Director
    Dept. of Neonatology
    Rabin Medical Center
    Beilinson Campus
    Petah Tikva 49100, Israel
    Phone: 972-3-9377473/2
    Fax:     972-3-9220068 / 9219685
    E-mail: merlobp@post.tau.ac.il

    Dr. Zully Gelman-Kohan,
    Director, Medical Genetics,
    Kaplan Medical Center,
    Rehovot, Israel.
    Phone: 972- 08- 9441390
    Fax:     972- 08- 9441765
    E-mail: zully@inter.net

    Dr. Eric Shinwell
    Director of Neonatology
    Kaplan Medical Center
    Rehovot, Israel
    Phone: 972- 08- 9441218
    Fax:     972- 08- 9441768
    E-mail: Shinwell@netvision.net.il

    Prof. Francis Mimouni
    Head, Department of Neonatology,
    Lis Medical Center, Ichilov Hospital,
    Tel-Aviv, Israel.
    Phone: 972- 03- 6925690
    Fax:     972- 03- 6925681
    E-mail: mimouni@tasmc.health.gov.il
    ^TOP

     Italy Campania: BDRCam
    Gioacchino Scarano,
    Registro Campano Difetti Congeniti (BDRCam),
    Medical Genetics Division,
    Azienda Ospedaliera "G. Rummo", Via dell’Angelo 1,
    82100 Benevento, Italy 
    Phone: 39- 0824-57374
    Fax:     39-0824-57495
    E-mail: giorecam@tin.it
    ^TOP

     Italy Emilia-Romagna: IMER
    Guido Cocchi, MD,  Programme Director 
    Istituto di Pediatria Preventiva/Neonatologia
    Universita' di Bologna
    Via Massarenti 11
    40138 Bologna, Italy
    Phone:  39-051-342754 /6364654
    Fax:     39-051-342754
    E-mail: guido.cocchi@unibo.it
    ^TOP

     Italy Lombardy: RMCL
    Programme Directors:
    Giovanna Tagliabue, MD
    E-mail: giovanna.tagliabue@istitutotumori.mi.it

    Paolo Contiero, PhD
    E-mail: paolo.contiero@istitutotumori.mi.it

    Roberto Tessandori, Sabrina Fabiano, Lucia Preto, Anna Maghini, Daniele Vergani, Andrea Tittarelli
    Congenital Malformation Registry of Northern Lombardy (CMRL)
    National Cancer Institute
    Via Venezian 1, I-20133 Milan, Italy
    Phone: +39 02 2390 3539
    ^TOP

     Italy North-East
    Romano Tenconi, MD,  Programme Director, until May 23, 2010

    Maurizio Clementi, MD, Programme Director, from May 24, 2010
    Servizio di Informazione Teratologia
    Genetica Medica Dipartimento Pediatria
    Via Giustiniani, 3
    35128 Padova, Italy
    Phone: 39-049-8213513
    Fax:     39-049-8211425 
    E-mail: Maurizio.clementi@unipd.it 
    ^TOP

     Italy Sicily: ISMAC
    Sebastiano Bianca, MD,  Programme Director
    Sicilian Registry of Congenital Malformations (ISMAC)
    Genetica medica ARNAS
    Garibaldi Nesima
    Via Palermo, 636
    95122 Catania, Italy
    Phone: 39-095-7595384
    Fax:     39-095-7595384
    E-mail: sebastiano.bianca@tiscali.it
    ^TOP

     Italy Tuscany: RTDC
    Fabrizio Bianchi, MD, Programme Director 
    IFC-Unit of Epidemiology
    CNR Area di Ricerca di San Cataldo
    Via Moruzzi 1
    56124 Pisa
    Phone: 39-050-3152100
    Fax:     39-050-3152095
    E-mail: fabriepi@ifc.cnr.it
    Web:   www.rtdc.it

    Dr. Anna Pierini, BSc, Project Manager
    Phone: 39-050-3152102
    Fax: 39-050-3152095
    E-mail: apier@ifc.cnr.it
    Web:   www.rtdc.it
    ^TOP

     Japan: JAOG
    Fumiki Hirahara, MD
    Yokohama City University Hospital
    Dept. OB V GYN
    3-9 Fukuura, Kanazawaku,
    Yokohama, 236-0004, Japan
    Phone: 81-45-787-2689
    Fax:     81-45-787-2689
    E-mail: hirafu@med.yokohama-cu.ac.jp
    ^TOP

     Malta: MCAR
    Miriam Gatt, MD, Programme Director
    Malta Congenital Anomalies Registry
    Department of Health Information
    95, Guardamangia Hill
    Guardamangia PTA 1313
    Malta
    Phone: 356 25599000
    Fax:     356 25599385
    E-mail: miriam.gatt@gov.mt
    ^TOP

     Mexico: RYVEMCE
    Osvaldo Mutchinick, MD,  Programme Director 
    RYVEMCE  Departamento de Genetica Inst. Nacional de Nutricion
    Tlalpan 1400
    Mexico DF, Mexico
    Phone: 52-5-5731200/ 52-5-5730611
               52-5-5737333 (ext 2426, 2425)
    Fax:     52-5-6556138
    E-mail: osvaldo@servidor.unam.mx ^TOP

     New Zealand
    Associate Professor Barry Borman, Programme Director
    New Zealand Birth Defects Monitoring Programme 
    Centre for Public Health Research
    Massey University
    PO Box 756
    Wellington 6140
    New Zealand
    Phone: +64-4-801-5799
    Fax:     +64-4-380-0600
    E-mail: b.borman@massey.ac.nz
    ^TOP

     Northern Netherlands
    Marian Bakker,  Programme Director
    Department of Genetics
    University Medical Centre Groningen
    University of Groningen
    PO Box 30001
    9700 RB Groningen, The Netherlands
    Phone: 31-50-3617110 / 3617115
    Fax:     31-50-3617232
    E-mail: Marian Bakker:  m.k.bakker@medgen.umcg.nl 
               Hermien de Walle:  h.e.k.de.Walle@med.rug.nl 
    Web:   www.eurocatnederland.nl
    ^TOP

     Norway
    Stein Emil Vollset, MD,  Programme Director 
    Department of  Medical Birth Registry of Norway
    Norwegian institute of public health
    Kalfarveien 31
    NO-5018 Bergen - Norway
    Phone: 47- 53 20 4002
    Fax:     47 - 53 20 4001
    E-mail: vollset@uib.no
    ^TOP

     Russia Moscow Region: MRRCM
    Ludmila Joutchenko, MD, Programme Director
    Moscow Regional Research Scientific Institute of Obstetric and Gynecology
    22a, Pokrovka St.
    101000 Moscow Russia
    Phone: 007-0959246228
    Fax:     007-0959215398
    E-mail: mrrcm@mail.ru
    ^TOP

     Slovak Republic
    Elena Szabova, Programme Director
    Slovak Teratologic Information Centre 
    Slovak Medical University
    Limbova 12
    833 03 Bratislava, Slovak Republic
    Phone: 00421 2 59370324
    E-mail: elena.szabova@szu.sk

    Eva Veghova, MD
    Centre of Clinical Genetics
    America´s square 3
    813 69 Bratislava, Slovak Republic
    Phone: 00421 2 58968855
    E-mail: genetika@faneba.sk

    PhDr. Daniela Brašenova
    Head of Section for Public Relations
    National Health Information Centre
    Lazaretská 26
    811 09 Bratislava, Slovak Republic
    Phone: 00421 2 57263901
    E-mail: daniela.brasenova@nczisk.sk
    ^TOP

     South Africa: SABDSS
    Rauf Sayed
    Dept. of  Public Health and Primary Health Care
    University of Cape Town-Medical School
    Observatoy 7925
    Cape Town, South Africa
    Phone: 27-21-4066482
    Fax:     27-21-4066163
    E-mail: Rauf.Sayed@uct.ac.za
    ^TOP

     South America: ECLAMC
    Eduardo Castilla, MD,  Programme Director 
    ECLAMC/Dept.Genetica/FIOCRUZ
    C.P. 926
    20010-970 Rio de Janeiro, Brazil
    Phone: 55-21-25528952
    Fax:     55-21-22604282(5521)
    E-mail: castilla@centroin.com.br
    ^TOP

     Spain: ECEMC
    Prof. María Luisa Martínez-Frías, PhD
    Director of the ECEMC (Spanish Collaborative Study of Congenital Malformations)
    and CIAC (Centro de Investigación sobre Anomalías Congénitas)
    Chief of the 724 Group of the CIBER de Enfermedades Raras (CIBERER)
    Instituto de Salud Carlos III
    C/Sinesio Delgado nº 6. Pabellón 3, 1ª planta
    28029 - Madrid, Spain
    Phone: 34-91-8222424
    Fax:     34-91-3877541
    E-mail: mlmartinez.frias@isciii.es 

    Eva Bermejo, PhD
    Researcher of the Instituto de Investigación de Enfermedades Raras (IIER)
    Person in charge of the Epidemiology Section of the ECEMC.
    E-mail: eva.bermeja@iscii.es

    Elvira Rodriguez-Pinilla, MD, PhD.
    Researcher of the CIBER de Enfermedades Raras (CIBERER)
    Person in charge of the Teratology Section of the ECEMC
    and the Teratology Information Services (SITTE and SITE)

    David Prieto, PhD
    Professor of Biostatistics
    Lecturer of the Department of
    Epidemiology & Population Health (Medical Statistics Unit)
    London School of Hygiene & Tropical Medicine
    ^TOP

     Sweden
    Karin Gottvall, PhD
    National Board of Health and Social Welfare
    S-106 30 Stockholm, Sweden
    Phone: 46-8-752443899
    Fax: 46-8-752473176
    E-mail: karin.gottvall@socialstyrelsen.se

    Karin Källén, PhD
    National Board of Health and Social Welfare
    S-106 30 Stockholm, Sweden
    Phone: 46-46-2227538
    E-mail: karin.kallen@med.lu.se

    Goran Anneren, MD,  PhD
    Department of Clinical Gentics
    Uppsala University Children's Hospital
    S-751 85 Uppsala, Sweden
    Phone: 46-18-665942
    Fax:     46-18-554025
    E-mail: goran.anneren@genpat.uu.se
    ^TOP

     Ukraine: OMNI-Net
    Dr. Wladimir Wertelecki, International Coordinator
    Department of Medical Genetics
    University of South Alabama
    307 University Blvd., CCCB, 274
    Mobile, Al, USA 36688
    Phone/Fax: 1 251 460 7505
    E-mail: genfir3@gmail.com

    Dr. Lyubov Yevtushok, Medical coordinator
    “OMNI-Net for Children”
    36, 16 Lypnya Str., Room 709
    Rivne, Ukraine 33028
    Phone/Fax: 38 036 262 3447
    E-mail: rivneomni@gmail.com 
               yevtushokl@gmail.com
    ^TOP

     UK Wessex: WANDA 
    Dr Diana Wellesley 
    Head Of Prenatal Genetics
    Wessex Clinical Genetics Service
    Princess Anne Hospital, Southampton SO16 5YA
    Phone: +442380 796167
    Fax:     +442380 794346
    E-mail: dgw@soton.ac.uk

    Lysa Styles
    Specialist Midwife in Fetal Medicine
    E-mail: lysa.styles@suht.swest.nhs.uk
    ^TOP

     USA Atlanta: MACDP
    Adolfo Correa MD, PhD
    Metropolitan Atlanta Congenital Defects Program
    National Center on Birth Defects and Developmental Disabilities
    Centers for Disease Control and Prevention
    Mailstop E-86
    1600 Clifton Road
    Atlanta, GA 30333
    U.S.A
    Phone: 404.498.3811
    Fax:     404.498.3040
    E-mail: ACorrea@cdc.gov
    ^TOP

     USA California: CBDMP 
    Marcia Ehinger, MD, Program Director
    California Birth Defects Monitoring Program
    California Department of Public Health
    Maternal, Child and Adolescent Health Division
    Center for Family Health
    1615 Capitol Avenue, MS 8300
    Sacramento, CA 95814 USA
    Phone: 1-916-6500367
    E-mail: Marcia.Ehinger@cdph.ca.gov
    Web: www.cdph.ca.gov

    ^TOP

     USA Texas: BDES
    Texas Birth Defects Epidemiology and Surveillance 
    Mark A. Canfield, Ph.D., Branch Manager 
    PO Box 149347
    Austin, TX 78714-9347, USA
    Phone: 512-458-7232
    Fax:     512-458-7630
    E-mail: mark.canfield@dshs.state.tx.us

    Lisa K. Marengo, M.S.
    Epidemiologist
    Texas Birth Defects Epidemiology and Surveillance
    PO Box 149347
    Austin, TX 78714-9347, USA 
    Phone: 512-458-7232
    Fax:     512-458-7630
    E-mail: Lisa.Marengo@dshs.state.tx.us
    Web:   www.dshs.state.tx.us/birthdefects
    ^TOP

     USA Utah: UBDN 
    Marcia Feldkamp, Director
    Utah Birth Defect Network
    Utah Department of Health
    PO Box 144697
    Salt Lake City, Utah 84114-4697 USA
    Phone: 801 584 8490
    Fax: 801 883 4668
    E-mail: marcia.feldkamp@hsc.utah.edu

    Miland Palmer, Surveillance Coordinator
    Utah Birth Defect Network
    Utah Department of Health
    PO Box 144697
    Salt Lake City, Utah 84114-4697 USA
    Phone: 801 584 8573
    Fax: 801 883 4668
    E-mail: mpalmer@utah.gov

    Website: http://www.health.utah.gov/birthdefect/
    ^TOP

      Wales: CARIS 
    Margery Morgan, Programme Director 
    Congenital Anomaly Register and Information Service (CARIS)
    Congenital Anomaly Register & Information Service,
    Level 3 West Wing,
    Singleton Hospital, Sketty Lane
    Swansea, Wales, SA2 8QA
    Phone: 44 1792 285241
    Fax:     44 1792 285242

    Relevant Contact Person: Dave Tucker
    E-mail: dave.tucker@swansea-tr.wales.nhs.uk